(Don't be fooled by Google ads - this is the Real KDQOL


This is the original and only true source of information about administration, scoring, and use of the Kidney Disease Quality of Life Instrument.

The long form of the KDQOL™ (134 items) was developed in 1994 by the Kidney Disease Quality of Life Working Group with support from Amgen.  After release of the KDQOL™ Long Form, the group began work on KDQOL™ short forms.  This site includes information on the KDQOL™-SF 1.3 and the KDQOL™-36 short forms. 

For the latest, check out:

Peipert, J.D. and Hays, R.D. (2017). Methodological considerations in using patient reported measures in dialysis clinics.  Journal of Patient-Reported Outcomes (2017) 1: 11.

Peipert, J.D. and Hays, R.D. (2017).  Using Patient-Reported Measures in Dialysis Clinics.  Clin J Am Soc Nephrol 12: 1889-1891.

Peipert, J.D., Bentler, P.M., Klicko, K., & Hays, R.D. (2017, in press). Psychometric properties of the Kidney Disease Quality of Life 36-item short form survey (KDQOL™-36) in the United States.  American Journal of Kidney Disease.



Open letter to Nephrology Nursing Journal Editor, Beth Ulrich

Beth Ulrich, EdD, RN, FACHE, FAAN, Editor, Nephrology Nursing Journal: The Danquah et al. review paper on quality of life measures for patients on hemodialysis (2010, vol. 37 #3) cites Bakewell et al. (2001) as the source for the Kidney Disease Quality of Life Short-Form (KDQOL-SF).  The attached article (published in 1994) is the actual source of the KDQOL instrument.  In addition, our website includes extensive information about the KDOQL-SF: https://www.kdqol.med.ucla.edu/   I am surprised that this lack of attention to detail slipped through the Nephrology Nursing Journal peer review and editoral process.   For a higher quality review paper, please see:

Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush, T. M., & Hays, R. D. (1996). A review of health-related quality of life assessment in end-stage renal disease. Clinical Therapeutics, 18(5), 887-938.

Please take a moment to register so that we may keep you informed of important updates to this site.

For other sources of information about the KDQOL™, please see:

ProQolid at

(link updated 4/11/2019)

PromotingExcellence.org at

The RenalNetwork, Inc at

This site was last updated on September 14, 2018