This is the original and only true source of information about
administration, scoring, and use of the Kidney Disease Quality of Life Instrument.
The long form of the
KDQOL™ (134 items) was developed in 1994 by the Kidney Disease Quality of Life
Working Group with support from Amgen. After release of the KDQOL™ Long Form,
the group began work on KDQOL™ short forms. This site includes information on
the KDQOL™-SF 1.3 and the KDQOL™-36 short forms.
For the latest, check out:
Peipert, J.D. and Hays, R.D. (2017). Methodological considerations in using patient reported measures in dialysis clinics. Journal of Patient-Reported Outcomes (2017) 1: 11.
Peipert, J.D. and Hays, R.D. (2017). Using Patient-Reported Measures in Dialysis Clinics. Clin J Am Soc Nephrol 12: 1889-1891.
Peipert, J.D., Bentler, P.M., Klicko, K., & Hays, R.D. (2017, in press). Psychometric properties of the Kidney Disease Quality of Life 36-item short form survey (KDQOL™-36) in the United States. American Journal of Kidney Disease.
Open letter to Nephrology Nursing Journal Editor, Beth Ulrich
Beth Ulrich, EdD,
RN, FACHE, FAAN, Editor, Nephrology Nursing Journal: The Danquah et al. review
paper on quality of life measures for patients on hemodialysis (2010, vol. 37
#3) cites Bakewell et al. (2001) as the source for the Kidney Disease Quality of
Life Short-Form (KDQOL-SF). The attached article (published in 1994) is the
actual source of the KDQOL instrument. In addition, our website includes
extensive information about the KDOQL-SF:
https://www.kdqol.med.ucla.edu/ I
am surprised that this lack of attention to detail slipped through the
Nephrology Nursing Journal peer review and editoral process. For a higher
quality review paper, please see:
Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush,
T. M., & Hays, R. D. (1996). A review of health-related quality
of life assessment in end-stage renal disease. Clinical Therapeutics,
18(5), 887-938.
Please take a moment to register so that we may keep you informed of important updates to this site.
For other sources of information about the KDQOL™, please see:
ProQolid at
https://eprovide.mapi-trust.org/search?form[searchText]=kdqol&form[ezxform_token]=uWffLaWQST2C6VNx2Su0VMrWa0S1bTPuQvZMQhZYviY
(link updated 4/11/2019)
PromotingExcellence.org at
http://www.promotingexcellence.org/resources/renal.html
The RenalNetwork, Inc at
http://www.therenalnetwork.org/Resources/resources.html
This site was last updated on September 14, 2018