Related links and other information
Here are some links related to research on kidney
disease, the KDQOL mission and projects, and our sponsors:
All Kidney News - an overview of available peer reviewed information on kidney disease.
assisTek touchscreen technology for administering the KDQOL in clinical trials.
DaVita, Inc. - provider of dialysis services and support. Helping people with chronic kidney disease lead productive, fulfilling lives with dignity.
DOPPS - The Dialysis Outcomes & Practice Patterns Study
End-stage Renal Disease: Patient Satisfaction
International Society for Quality of Life Research
Kidney MD - An educational site dedicated to keep you informed of kidney disease issues.
MAPI Institute - Questionnaires and translations, etc...
MAPI Research Trust - Patient Reported Outcomes and Pharmaco-Epidemiology.
National Centre for Health
Outcomes Development (NCHOD)
Devoted to patient-assessed health instruments.
Includes a bibliographic resource comprising over 6000 abstracts
relating to published reports of instrument evaluations.
National Kidney Foundation (NKF)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
National Quality Forum - National Voluntary Consensus Standards for End
Stage Renal Disease Care
This project seeks to achieve voluntary consensus on a set of
performance measures that can be used to assess the quality of end stage
renal disease (ESRD) care in the United States.
Nephrology Social Work
Archive
A collaborative archive for renal social work professionals,
Nephrology Social Work Archive makes available many documents and
links useful to practitioners of Medical Social Work and other
professionals.
Promoting Excellence
Information on improving health care for dying people and their
families. End-of-life care..
Proqolid: Patient-reported
outcome and quality of life instruments database.
Developed by Mapi
Research Institute and managed by
Mapi Research Trust
(Lyon, France), PROQOLID aims to identify
and describe PRO and QOL instruments to help you choose appropriate
instruments and facilitate your access to them.
The Renal Network
"facilitates the achievement of optimal wellness for renal disease
patients"